Barbara Burton

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Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Dr. Barbara K. Burton is a Professor Emeritus of Pediatrics at the Northwestern University Feinberg School of Medicine and an Emeritus Attending Physician in the Edwards Family Division of Genetics and Rare Diseases at the Ann & Robert H. Lurie Children’s Hospital of Chicago. Her career has been focused on inborn errors of metabolism and newborn screening. Dr. Burton has been an investigator in numerous natural history studies and clinical trials of new therapies for a wide range of metabolic disorders, including many lysosomal disorders. She has published over 300 peer-reviewed articles, 50 chapters in books and is an editor of two textbooks.
Dr. Burton is active in professional organizations and is a Past-President of the Society for Inherited Metabolic Disorders and the Chicago Pediatric Society. She served as a member of the Secretary’s Advisory Committee on Heritable Disorders in Infants and Children, the federal advisory committee that makes recommendations regarding newborn screening in the US and served for many years as Chairman of the Newborn Screening Advisory Committee of the Illinois Department of Public Health. She received a Lifetime Achievement Award from the March of Dimes in 2017. She received the PKU Hero Award from the National PKU Alliance in 2018 and the Legacy Award for Clinical Practice from the National MPS Society in 2024. She is a member of the Scientific Advisory Board of the National MPS Society and serves on the medical advisory board of a number of patient advocacy organizations.
Financial relationships
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Attribution:SelfType of financial relationship:SpeakerIneligible company:BiomarinTopic:PKUDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:ConsultantIneligible company:AlltrnaTopic:PKUDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:ConsultantIneligible company:Applied TherapeuticsTopic:GalactosemiaDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:ConsultantIneligible company:ChiesiTopic:Alpha-mannosidosisDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:ConsultantIneligible company:DenaliTopic:MPS II and MPS IIIDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:ConsultantIneligible company:JCR PharmaTopic:MPS IIIDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:ConsultantIneligible company:ModernaTopic:Propionic acidemiaDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:ConsultantIneligible company:UltragenyxTopic:LC-FAODDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:ConsultantIneligible company:UniqureTopic:Fabry diseaseDate added:06/05/2026Date updated:06/05/2026
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Attribution:SelfType of financial relationship:SpeakerIneligible company:ZevraTopic:NPCDate added:06/05/2026Date updated:06/05/2026

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