Melissa Grove is an advocate for people living with limb-girdle muscular dystrophy (LGMD), openly sharing her own experiences with her diagnosis with LGMD2I/R9 to help others feel less alone. She speaks at conferences like the Wellstone Center Dystroglycanopathy Patient & Family Conference, Speak Foundation, and contributes to the Muscular Dystrophy Association’s peer connection programs and community storytelling (“Quest”) to raise awareness, build community, and support ongoing research. She is an Advisory Board member of CureLGMD2i and also an MDA Advocacy Captain.