TREAT-NMD LGMD Masterclass

Atlanta, GA US
November 13, 2026 to November 14, 2026

The LGMD Masterclass is an advanced educational program designed for healthcare professionals involved in the diagnosis, treatment, and multidisciplinary management of patients with Limb-Girdle Muscular Dystrophy (LGMD). As the understanding of LGMD continues to evolve, with advances in genetic diagnostics, imaging modalities, standards of care, and emerging therapeutic options, clinicians require access to up-to-date, evidence-based education to support optimal patient outcomes.

This interactive masterclass will bring together internationally recognized experts, healthcare professionals, patients, and patient advocacy representatives to provide a comprehensive overview of the current LGMD landscape. Participants will gain practical knowledge on diagnostic pathways, including genetic testing strategies and the role of muscle MRI in diagnosis and disease characterization. Through expert-led presentations and case-based discussions, attendees will explore best practices in the overall management of individuals with LGMD, including the cardiac, respiratory, and physiotherapy considerations that are essential to multidisciplinary care.

The program will also provide insights into the clinical trials landscape and the latest developments in approved and emerging therapies, enabling participants to better understand future treatment opportunities and their potential impact on patient care. A dedicated clinical case studies workshop will facilitate discussion of real-world challenges and encourage the sharing of experiences and best practices among peers.

Target Audience

This activity is designed for an audience of fully qualified healthcare professionals involved in the diagnosis and care of adults with neuromuscular disease, including adult neurologists (particularly those transitioning into neuromuscular subspecialty practice), pediatric neurologists seeking to understand adult disease progression, neuromuscular specialist nurses, physiotherapists and occupational therapists working with neuromuscular adults, respiratory and cardiac clinicians involved in neuromuscular management, as well as genetic counsellors and clinical psychologists supporting adults with chronic neuromuscular conditions.

Learning Objectives

Upon completion of the educational activity, participants should be able to:

  • Interpret and apply current evidence on LGMD diagnostic pathways, natural history, and standards of care when assessing patient cases
  • Compare and evaluate current and emerging therapeutic approaches for the management of LGMD
  • Discuss the impact of LGMD on patients and caregivers and incorporate patient-reported experiences into care planning
  • Select appropriate strategies and best practices to improve the diagnosis, management, and multidisciplinary care of patients with LGMD

Commercial Support

There is no commercial support for this activity.

Course summary

Available credit: 
  • 7.75 AANP Contact Hours

    Nurse Practitioners
    This activity has been planned and implemented in accordance with the Accreditation Standards of the American Association of Nurse Practitioners® (AANP) through the joint providership of AKH Inc., Advancing Knowledge in Healthcare and Treat-NMD.  AKH Inc., Advancing Knowledge in Healthcare is accredited by AANP as an approved provider of nurse practitioner continuing education. Provider number: 030803. This activity is approved for 7.75 contact hour(s) (which includes 0.00 hour(s) of pharmacology).

  • 7.75 AAPA Category 1 CME

    Physician Associates
    AKH Inc., Advancing Knowledge in Healthcare has been authorized by the American Academy of Physician Associates (AAPA) to award AAPA Category 1 CME credit for activities planned in accordance with AAPA CME Criteria. This activity is designated for 7.75 AAPA Category 1 CME credits. PAs should only claim credit commensurate with the extent of their participation.

  • 7.75 AMA PRA Category 1 Credit™

    Physicians
    AKH Inc., Advancing Knowledge in Healthcare designates this Live Activity for a maximum of 7.75 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

  • 7.75 ANCC Contact Hours

    Nurses
    Credit being awarded: 7.75 ANCC contact hours

  • 7.75 CDR

    Dietitians

  • 7.75 AMA PRA Category 1 Credit™ Non-MD

    Non-Physicians Seeking AMA Credit
    AKH Inc., Advancing Knowledge in Healthcare designates this Live Activity for a maximum of 7.75 AMA PRA Category 1 Credit(s)™.

Course opens: 
11/13/2026
Course expires: 
01/15/2027
Event starts: 
11/13/2026 - 1:30pm EST
Event ends: 
11/14/2026 - 3:30pm EST
Cost:
$0.00
Add to calendar: 
Rating: 
0

Day 1 Friday, November 13th

 SpeakerAccredited Session
1:40-2:20 PMKelly Brazzo, MSPatient Perspective and the Role of Patient Advocacy Organisations
Sarah Shira Emmons, MPH
Melissa Groves
2:20-2:50 PMDr. Jeff StatlandThe Overall Management of the LGMD Patient
2:50-3:20 PMSubramony SubramonyThe Diagnostic Approach in LGMD
3:50-4:30 PMDr. Nicholas JohnsonGenetic Testing in LGMD
4:30-5:00 PMDr. Megan Iammarino, DPTMovement, Stretching and Exercise Space
5:00-5:10 PMDr. Nicholas JohnsonClosing Remarks

Day 2, Saturday November 14th

 

09:10 - 09:40 AMDr.  Glen WalterTrack 1: The Role of MRI in LGMD Diagnosis
09:40 - 10:10 AMTahseen MozafarTrack 1: The Role of Muscle Biopsy in LGMD
09:10- 10:10 AMDr. Megan Iammarino, DPTTrack 2: Physio: Background on LGMDs & Clinical Presentation
Michael Kiefer, DPT,PhD
10:40 - 11:40 AMMultiple Speakers (already part of program) Track 1: Clinical Case Studies Workshop
11:40-12:30PMDr. Nicholas JohnsonTrack 1: Clinical Trials Landscape, Approved and Emerging Therapies for LGMD
10:40-12:30 PMDr. Megan Iammarino, DPTTrack 2: Physio: Natural History & Ongoing Clinical Studies
Michael Kiefer, DPT,PhD
1:30-2:00 PMDr. Jenn LevyTrack 1: The Role of Registries and Developing Standard of Care
1:30-2:00 PMDr. Megan Iammarino, DPTTrack 2: Physio: Interactive Case Sessions
Michael Kiefer, DPT,PhD
2:00-2:40 PMChet Villa, MDBest Practice for Care Management: Cardiac Care
2:40-3:20 PMDr. Richard ShellBest Practice for Care Management: Respiratory Care
3:20-3:30 PMDr. Nicholas JohnsonClosing Remarks
Hotel Colee
3377 Peachtree Road NE
Atlanta, GA 30326
United States

All of the relevant financial relationships listed for these individuals have been mitigated.

It is the policy of AKH Inc. to ensure independence, balance, objectivity, scientific rigor, and integrity in all of its continuing education activities. The author must disclose to the participants any significant relationships with ineligible companies whose products or devices may be mentioned in the activity or with the commercial supporter of this continuing education activity. Identified conflicts of interest are mitigated by AKH prior to accreditation of the activity. AKH planners and reviewers have no relevant financial relationships to disclose.

Disclosure of Unlabeled Use and Investigational Product 
This educational activity may include discussion of uses of agents that are investigational and/or unapproved by the FDA. Please refer to the official prescribing information for each product for discussion of approved indications, contraindications, and warnings.

Disclaimer 
This course is designed solely to provide the healthcare professional with information to assist in his/her practice and professional development and is not to be considered a diagnostic tool to replace professional advice or treatment. The course serves as a general guide to the healthcare professional, and therefore, cannot be considered as giving legal, nursing, medical, or other professional advice in specific cases. AKH Inc. specifically disclaim responsibility for any adverse consequences resulting directly or indirectly from information in the course, for undetected error, or through participants misunderstanding of the content. If you would like to opt out from future communications from AKH please send an email to [email protected] with your information with "Opt Out" in the subject line.

Committee Member, Planner, Staff(s)

Dorothy Caputo, MA BSN RN

has no relevant financial relationships to disclose at this time.

Nicholas Johnson, MD

has a financial relationship (Researcher) with AMO Pharma;.
has a financial relationship (Researcher) with Sarepta;.
has a financial relationship (Researcher) with Dyne;.
has a financial relationship (Researcher) with Vertex;.
has a financial relationship (Researcher) with Edgewise;.
has a financial relationship (Researcher) with Novartis;.
has a financial relationship (Researcher) with Pepgen;.
has a financial relationship (Researcher) with Arthex;.
has a financial relationship (Researcher) with Askbio;.
has a financial relationship (Researcher) with BridgeBio;.
has a financial relationship (Researcher) with Pfizer;.
has a financial relationship (Consultant) with Sarepta;.
has a financial relationship (Consultant) with Askbio;.
has a financial relationship (Consultant) with Vertex;.
has a financial relationship (Consultant) with Dyne;.
has a financial relationship (Consultant) with Novartis;.
has a financial relationship (Consultant) with Arthex;.
has a financial relationship (Consultant) with Juvena;.
has a financial relationship (Consultant) with Regents;.
has a financial relationship (Consultant) with Alnylam;.
has a financial relationship (Individual stocks and stock options) with Evolyra Therapeutics;.
has a financial relationship (Individual stocks and stock options) with Repeat RNA therapeutics;.
has a financial relationship (Individual stocks and stock options) with Juvena;.

Susan Mackowiak, NP

has no relevant financial relationships to disclose at this time.
Reviewer(s)

Dorothy Caputo, MA BSN RN

has no relevant financial relationships to disclose at this time.

Susan Mackowiak, NP

has no relevant financial relationships to disclose at this time.
Speaker, Instructor, Faculty(s)

Kelly Brazzo, MS

has a financial relationship (Consultant) with BridgeBio;.
has a financial relationship (Consultant) with AskBio;.

Sarah Emmons, MPH

has no relevant financial relationships to disclose at this time.

Melissa Grove

has a financial relationship (Speaker) with Bridge Bio;.

Megan Iammarino

has a financial relationship (Advisor) with Dyne;.
has a financial relationship (Advisor) with Sarepta;.

Nicholas Johnson, MD

has a financial relationship (Researcher) with AMO Pharma;.
has a financial relationship (Researcher) with Sarepta;.
has a financial relationship (Researcher) with Dyne;.
has a financial relationship (Researcher) with Vertex;.
has a financial relationship (Researcher) with Edgewise;.
has a financial relationship (Researcher) with Novartis;.
has a financial relationship (Researcher) with Pepgen;.
has a financial relationship (Researcher) with Arthex;.
has a financial relationship (Researcher) with Askbio;.
has a financial relationship (Researcher) with BridgeBio;.
has a financial relationship (Researcher) with Pfizer;.
has a financial relationship (Consultant) with Sarepta;.
has a financial relationship (Consultant) with Askbio;.
has a financial relationship (Consultant) with Vertex;.
has a financial relationship (Consultant) with Dyne;.
has a financial relationship (Consultant) with Novartis;.
has a financial relationship (Consultant) with Arthex;.
has a financial relationship (Consultant) with Juvena;.
has a financial relationship (Consultant) with Regents;.
has a financial relationship (Consultant) with Alnylam;.
has a financial relationship (Individual stocks and stock options) with Evolyra Therapeutics;.
has a financial relationship (Individual stocks and stock options) with Repeat RNA therapeutics;.
has a financial relationship (Individual stocks and stock options) with Juvena;.

Michael Kiefer, DPT, PhD

has a financial relationship (Consultant) with Juvena Therapeutics, Inc;.
has a financial relationship (Consultant) with Dyne Therapeutics;.
has a financial relationship (Independent contractor (including contracted research)) with Bridge Bio LLC;.

Jennifer Levy, PhD

has no relevant financial relationships to disclose at this time.

Tahseen Mozaffar, MD, FAAN, FANA

has a financial relationship (Researcher) with Amicus;.
has a financial relationship (Researcher) with AnnJi;.
has a financial relationship (Researcher) with AroBio;.
has a financial relationship (Researcher) with Argenx;.
has a financial relationship (Researcher) with Ask Bio;.
has a financial relationship (Researcher) with Astellas Gene Therapy;.
has a financial relationship (Researcher) with Cabaletta;.
has a financial relationship (Researcher) with Cartesian;.
has a financial relationship (Researcher) with Fate Therapeutics;.
has a financial relationship (Researcher) with MLBio;.
has a financial relationship (Consultant) with Biocryst;.
has a financial relationship (Consultant) with Poseida;.
has a financial relationship (Researcher) with Shionogi;.
has a financial relationship (Researcher) with Ultragenyx;.
has a financial relationship (Consultant) with Regneron;.

Richard Shell

has no relevant financial relationships to disclose at this time.

Jeffrey Statland, MD

has a financial relationship (Consultant) with Avidity;.
has a financial relationship (Consultant) with Dyne;.
has a financial relationship (Consultant) with Sanofi;.
has a financial relationship (Consultant) with Takeda;.
has a financial relationship (Consultant) with ITF Therapeutics;.
has a financial relationship (Consultant) with EcoR1;.
has a financial relationship (Consultant) with REGENXBIO;.
has a financial relationship (Consultant) with Scholar Rock;.
has a financial relationship (Consultant) with Ionis;.
has a financial relationship (Consultant) with Souffle Therapeutics;.

S H Subramony

has a financial relationship (Researcher) with Biogen/Reata;.
has a financial relationship (Researcher) with Avidity/Novartis;.
has a financial relationship (Researcher) with Vertex;.
has a financial relationship (Researcher) with Arthex;.
has a financial relationship (Researcher) with Dyne;.
has a financial relationship (Researcher) with PTC;.
has a financial relationship (Researcher) with Sanofi;.
has a financial relationship (Researcher) with Larimar;.
has a financial relationship (Consultant) with Avidity;.
has a financial relationship (Consultant) with Fulcrum;.
has a financial relationship (Consultant) with PTC;.
has a financial relationship (Consultant) with Amicus;.
has a financial relationship (Consultant) with Solid Bio;.

Chet Villa

has a financial relationship (Consultant) with Capricor ;.
has a financial relationship (Consultant) with Sarepta ;.
has a financial relationship (Consultant) with Solid bioscience ;.
has a financial relationship (Consultant) with Regenx;.
has a financial relationship (Consultant) with ITF therapeutics ;.
has a financial relationship (Consultant) with Lexeo ;.
has a financial relationship (Consultant) with Edgewise therapeutics ;.
has a financial relationship (Consultant) with Catalyst;.
has a financial relationship (Consultant) with secretome;.
has a financial relationship (Consultant) with Precision;.
has a financial relationship (Consultant) with MLBio;.
has a financial relationship (Consultant) with Roche;.

Glenn Walter

has no relevant financial relationships to disclose at this time.

In support of improving patient care, this activity has been planned and implemented by AKH Inc., Advancing Knowledge in Healthcare and Treat-NMD. AKH Inc., Advancing Knowledge in Healthcare is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

 

 

This activity was planned by and for the healthcare team, and learners will receive 7.75 Interprofessional Continuing Education (IPCE) credit for learning and change.

Available Credit

  • 7.75 AANP Contact Hours

    Nurse Practitioners
    This activity has been planned and implemented in accordance with the Accreditation Standards of the American Association of Nurse Practitioners® (AANP) through the joint providership of AKH Inc., Advancing Knowledge in Healthcare and Treat-NMD.  AKH Inc., Advancing Knowledge in Healthcare is accredited by AANP as an approved provider of nurse practitioner continuing education. Provider number: 030803. This activity is approved for 7.75 contact hour(s) (which includes 0.00 hour(s) of pharmacology).

  • 7.75 AAPA Category 1 CME

    Physician Associates
    AKH Inc., Advancing Knowledge in Healthcare has been authorized by the American Academy of Physician Associates (AAPA) to award AAPA Category 1 CME credit for activities planned in accordance with AAPA CME Criteria. This activity is designated for 7.75 AAPA Category 1 CME credits. PAs should only claim credit commensurate with the extent of their participation.

  • 7.75 AMA PRA Category 1 Credit™

    Physicians
    AKH Inc., Advancing Knowledge in Healthcare designates this Live Activity for a maximum of 7.75 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

  • 7.75 ANCC Contact Hours

    Nurses
    Credit being awarded: 7.75 ANCC contact hours

  • 7.75 CDR

    Dietitians

  • 7.75 AMA PRA Category 1 Credit™ Non-MD

    Non-Physicians Seeking AMA Credit
    AKH Inc., Advancing Knowledge in Healthcare designates this Live Activity for a maximum of 7.75 AMA PRA Category 1 Credit(s)™.

Price

Cost:
$0.00
Please login or register to take this course.

Criteria for Success
To obtain credit, you must complete the activity evaluation and claim credit based on your attendance.  The Certificate of Completion is immediately available for download after submitting your evaluation.  It will remain in your profile transcript for future retrieval if needed.  It can be found under My Account > My Activities > Completed Activities.

If you have any questions, contact [email protected].